Author: Jerry Schill
Last month I explained the chronological journey of our memory loss, dementia, and Alzheimer’s. We ended the post with our first “family” visit with the neurologist and her comment to “treasure the memories”.
One consistent thing about this disease is that nothing is consistent. We have an attached garage to the house and a two-stall garage out back where the workshop is. There was a period when Pam was my shadow, even following to the bathroom. She was very unsure of everything and was frightened if I was out of sight. When going out to the garage she would follow me there, and it was hard to get her to sit down for a while. While that may seem endearing, it was downright aggravating when trying to work on anything especially if it involved moving or working on a vehicle. That went on for quite some time, but it has evolved to where now it’s hard to convince her to go outside. If I’m working in the yard or the garage, I like to be able to keep a close eye on her for a number of reasons, but I also like her to get out and get fresh air. While this change happened over time, I didn’t really notice until one of the kids mentioned to me that Mom wasn’t following me around like she used to.
Taking meds has gone from easy-peasy to quite a challenge. There is one pill that has been the most problematic, and after you’re convinced it’s swallowed you find it under the table under the recliner or in the bedroom. It’s a pill that does not dissolve easily so she kept it under her tongue until we were not looking. As a result, I now grind her morning pills and dissolve them in very warm milk or a hot drink. It’s better to dissolve and add to cereal because it has a very bitter taste. It’s been working very well, although grinding some pills isn’t recommended. Sometimes you just must take the best, maybe not perfect, option.
Me and the kids agreed that her condition was progressing, so we made another appointment with a different neurologist in March 2018. Again, it was a family visit that came about after more testing. The new diagnosis went from Mild Cognitive Impairment to dementia. One of the kids asked about her driving and he strongly cautioned against it. I told the doctor that she hasn’t shown any problem driving up to this point, but he said the problem comes when she’s on her way to go shopping and encounters a detour due to an accident. She could end up miles away and he cited some examples of unnamed patients who did just that.
I’ve heard of many examples of loved ones who have gone through a literal hell when taking the car keys. However, I didn’t have that problem. Pam didn’t offer any resistance at all, but of course, it now meant more duties for me to do the driving. She was still able to shop, it was just the driving that was the problem. Now shopping wasn’t without it’s challenges as well, but we’ll cover that next month.